Our biggest role as an organization is to be there for parents who have recently received the diagnosis of their child, but also to be a platform for those who want further contact and togetherness within the CDH family. All stories are different and all experience will be able to help new families through their CDH journey. Your voice as a member of the association is extremely important for those who come after you. Being part of such a community can also help children with a rare diagnosis to see that they are not alone, and to make lifelong friendships.
We apologize that the forms are in Norwegian. Please reach out to us if you have trouble filling them out.